What is interstitial cystitis or IC? It is a chronic bladder syndrome that causes immense amounts of pain. In this episode, Dr. Purser talks about new urinary genetics testing for bacteria (Polymerase Chain Reaction or PCR), new pain options, and a diet that actually work for interstitial cystitis.
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Shelly Tilton said:
I have IC. Just went thru a month unable to culture bacteria. went thru Keflex (x2 7 day 500mg BID) , Cipro 500mg BID, Rocephin 1GM IM and just finished with Cefuroxime Axetil 500 mg BID x 7 days.
Some cultures grew out bacteria that Keflex should cover. When I was changed over to Cipro the initial lab reading could not pick up bacteria because to many WBC to count. It took me weeks to get into my urologist. I was already DX with IC. My urologist SAID THERE WAS NO WAY THAT I should have continued with SX after the Rocephin IM. He did a culture of my last urine and said there were no bacteria. He thinks all the sx was a bad flair of IC. I explained how I would void and it looked like Puss, not just clowdy.
I first went to my urologist over a year ago and he preformed a Cystoscopy. THAT IS WHEN HE OFFICIALLY DX me with IC. Otherwise the bladder looked healthy. I am NOT a smoker. I could be better at less caffeine from diet soda. I am now on Amotriptoline and hydroxazine which helps some. I was DX with do Fibromyalgia almost 10 years ago.
He now wants to do a Hydrodistention. He said it would be under general anesthesia which I am not a huge fan of . Especially if your infoŕmation can test for organisms not otherwise detectable.
My cell phone number is 515-368-0618. I am a ER/ICU nurse currently working nights. I would love to have someone contact me anout more info on cost, insurance coverage etc. If I don’t answer it is probably because I am sleeping..
January 30, 2023